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  • Author : Owlunar
  • Support : 4
  • Topic : Our stories
16 Feb 2017 09:49 AM
Senior Contributor

Hi @Former-Member

 

I am sorry I haven't been on line - I have had more computer problems that I have actually fixed myself again

 

I read you post about your Dad and the way no one will hand him a drink and he has to find his way through an obstacle course to get his drinks - that is so unfair and I am so sorry -

 

Being in hospital they can rehydrate him - he needs better care but you know that -

 

I have had a few days of really bad pain - who knows what causes a flare - I maybe could have fixed my computer more quickly if I had been feeling better

 

Pain does wear us down. How do I cope?Basially anything that is not essential has to go by the board - I have spent several days with the hot pack watching TV or reading and finding myself feeling better in the afternoon and evening - but I am tired today and I think I will go to bed early tonight

 

The cure lies somewhere between resting and moving about without causing physical stress - and the way you feel is normal - it's one more thing to add to all you are going through - and knowing your Dad is ill is likely to make it harder to cope with it - I have found things make it harder - not worse -

 

And it makes us tired and wears it down - otherwise having my computer working would be so great I would stay here for as long as I wanted to but it is better to take it easy

 

All the best and sorry for the delay in replying

 

Dec

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